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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.


Narcolepsy and Apnea

Started by Carol in General 4 hours ago. 0 Replies

Several years ago I was diagnosed with narcolepsy. I also have headaches and depression, which are often present in apnea patients. I'm in my second month trying C-PAP for the first time. It's helpful; I sleep fewer hours (approx. 8 at night) and…Continue

Ambien XR

Started by copingwithnarcolepsy in General. Last reply by dancermom yesterday. 1 Reply

Regular Ambien didn't allow me to sleep for more than 4 hours at a time. I have switched to ambien XR and I am finding that I can sleep 6 hours at night with CPAP. I DO feel groggy in the morning, which I don't like because morning is my best time…Continue

Tags: XR, Ambien, medications

Focusing vs Time

Started by Memedawn in General. Last reply by copingwithnarcolepsy on Monday. 11 Replies

I don't know if it is just me, but I have huge issues with staying focused.  It's not that I can't focus at times, but I feel that my mind gets muggy and over crowded at times.  Well a lot.  Especially when I have a lot piled on me.  Maybe it's…Continue

Tags: sleepiness, with, time, racing, focusing

Not quite Narco, but perhaps just a hint of understanding

Started by dancermom in General on Saturday. 0 Replies

Hi, everyone, I have been having a week of extreme jet lag after returning from Germany. I don't seem to be sorting out my circadian rhythms very well. Drowsiness all day, short naps at odd times, wakefulness at night with just a few hours of sleep.…Continue

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Latest Activity

Carol posted a discussion

Narcolepsy and Apnea

Several years ago I was diagnosed with narcolepsy. I also have headaches and depression, which are…See More
4 hours ago
Scott Orn left a comment for Jenny Wakefield
"So glad to have you here Jenny. Welcome! One tip, if you have specific questions it's best to…"
5 hours ago

dancermom left a comment for Jenny Wakefield
"Hi, Jenny, it's nice to see you here. I believe I wrote to you on FB today. Feel free to post…"
5 hours ago
Jenny Wakefield is now a member of Living With Narcolepsy - Online Support Group
5 hours ago
Lpwolfe6 liked Lpwolfe6's blog post Some one stole my xyrem
8 hours ago

dancermom replied to copingwithnarcolepsy's discussion Ambien XR
"I'm not sure why no responses, Coping, unless everyone is taking regular Ambien instead of XR.…"
Scott Orn left a comment for Joy
"Huge welcome Joy!  One tip, if you have specific questions it's best to start a New…"

dancermom left a comment for furiousity
"Happy birthday, furiousity, I hope you are well and have a happy day."

Top Content 

1 Bell's Palsy and Narcolepsy? Just wondering!

Bell's Palsy and Narcolepsy? Just wondering!

Added by copingwithnarcolepsy on March 29, 2014

2 Does it ever get better?

Does it ever get better?

Added by Donna T on April 10, 2014

3 Some one stole my xyrem

Some one stole my xyrem

Added by Lpwolfe6 on April 21, 2014

4 Newly Diagnosed with Narcolepsy

Newly Diagnosed with Narcolepsy

Added by Gretchen on March 11, 2014

5 Ambien XR

Ambien XR

Posted by copingwithnarcolepsy on April 22, 2014


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Blog Posts

Some one stole my xyrem

Posted by Lpwolfe6 on April 21, 2014 at 3:41pm 3 Comments

Someone along the way: in the pharmacy or maybe in the warehouse or the trucker. Unsealed my prescription sealed bottle of xyrem and took some , a lot! They resealed back the brown box and I didn't notice till I had already signed for it. Now I have… Continue

Never give up.

Posted by Armando Abrero on April 20, 2014 at 3:57am 0 Comments

Just wanted to share this inspiring video.

Laugh often. Love a lot. Be strong. Never give up.…


Does it ever get better?

Posted by Donna T on April 10, 2014 at 5:03am 5 Comments

Hi guys!

I was only diagnosed in January and at first I thought brilliant I am not crazy or losingmy mind like everyone was telling me I was. I was delighted to have a name that linked all of the crazy things that had been happening to me… Continue

Bell's Palsy and Narcolepsy? Just wondering!

Posted by copingwithnarcolepsy on March 29, 2014 at 7:30am 9 Comments

When I was 24 a very strange thing happened to me. I woke up one morning and my entire left side of my face was paralyzed. I immediately called my mother (who could have been a practicing doctor with all the medical knowledge she possessed)…



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