Welcome

Welcome! You are not alone.

If your family has been affected by Narcolepsy, consider Living With Narcolepsy your second home.

NOW....GET STARTED:

1. Become a Member 
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Birthdays

Birthdays Today

Birthdays Tomorrow

Need a Doctor or Specialist?

Need a Second Opinion?

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

Community Moderators

" To Know the Joy of Giving"

Videos

  • Add Videos
  • View All

ClinicalTrials.gov Studies

Loading… Loading feed

PARTNERS

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

Badge

Loading…

About

 

What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.

Forum

Co-morbidity and Nacrolepsy

Started by KristinTMAAF in General. Last reply by KristinTMAAF 26 minutes ago. 6 Replies

Something I have noticed is that many of us with Narcolepsy also have other health conditions.  I find a lot of the time that individuals I come across tend to have autoimmune diseases or connective tissue diseases.  Another common issue I have…Continue

Xyrem

Started by Mad Beach Narco in General. Last reply by KristinTMAAF 29 minutes ago. 8 Replies

Does anyone take Xyrem for Cataplexy?Continue

Parking permits, anyone?

Started by Ranger in General. Last reply by Ranger 15 hours ago. 11 Replies

Hello All,I'm almost afraid to ask this question after doing a Google search and reading some of the angry responses at different Narcolepsy forum...Many people have a number of medical issues along with Narcolepsy that it seems reasonable to have…Continue

Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Ranger liked KristinTMAAF's discussion Co-morbidity and Nacrolepsy
9 minutes ago

Moderator
KristinTMAAF replied to KristinTMAAF's discussion Co-morbidity and Nacrolepsy
"Yes!   Our systems are so compromised by this disease, I don't think we even realize the…"
26 minutes ago

Moderator
KristinTMAAF replied to Mad Beach Narco's discussion Xyrem
"I know that everyone I have met that takes Xyrem are very happy on it.  They all have had much…"
29 minutes ago

Moderator
Nel left a comment for ronnie
"Hello Ronnie and Happy Birthday! I hope you are going to have a lovely day. The sun is shining in…"
11 hours ago

Moderator
Nel left a comment for Shan
"Hello Shan and welcome to the group. I see you have already joined in one of the discussions while…"
11 hours ago
almarr91 replied to Nel's discussion For anyone who didn't see almarr's blog on narcolepsy here is the link. Very thought provoking, and funny
"That would be absolutely wonderful! Thank you! "
11 hours ago
KitKat replied to Mad Beach Narco's discussion Xyrem
"I have cataplexy with narcolepsy. My sleep study showed that I have 32 brain arousals an hour.…"
15 hours ago
Scott Orn left a comment for KitKat
"Hi KitKat -  Huge welcome to the community! This is a great place! One tip, if you have…"
15 hours ago

Photos

Loading…
  • Add Photos
  • View All
 
 
 

Help Us Help Others

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Help Ben's Friends

Like, Follow & Forward Us!

Follow Me on Pinterest

Join Ben's Friends

To Support LivingWithNarcolepsy.org, Click an Ad. Or Two.

Blog Posts

June 2014 Community Newsletter

Posted by Ben Munoz on June 29, 2014 at 11:24pm 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…
Continue

May 2014 Community Newsletter

Posted by Ben Munoz on May 30, 2014 at 4:30am 0 Comments

Rejoice and celebrate the season of Spring. Enjoy the colors and  the beauty of nature. Reach out to your friends and loved ones and share the warmth, the colors and happiness of Spring. Greetings from Ben’s Friends!

Welcome…

Continue

Life as a "Zebra", When things Become Personal

Posted by KristinTMAAF on May 20, 2014 at 3:10am 2 Comments

For anyone who took a glance at my profile, you can tell I have a complex story. My DX. range from Ehler-Danlos and Aneurysms/Vascular Anomalies to Narcolepsy and Autonomial dysfunctions. I have multi system malfunctions and a high rate comorbidity… Continue

From the writing of Monica Baldwin, 1893 - 1975

Posted by Nel on May 14, 2014 at 2:34am 3 Comments

The moment when you first wake up in the morning is the most wonderful of the 24 hours. No matter how weary or dreary you may feel, you possess the certainty that, during the day that lies before you, absolutely anything may happen. And the fact… Continue

Events

© 2014   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service