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About

 

What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Forum

What do you like to do to occupy your time with?

Started by Ben Munoz in General on Monday. 0 Replies

For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we…Continue

Dont want to work out because im tired all the time!!!!!!!!!!!! :(

Started by Britt_Nike23 in General May 15. 0 Replies

I am in high school and im a great basketball player, i played my first 2 years and was in great shape having a blast. but then i stopped for a couple months and gained alot of weight!! i mean alot!! :( and i cant even play the sport i love. im so…Continue

Tags: out, work, tired, weight

Anyone else dealing with multiple conditions?

Started by Belboz99 in General. Last reply by Belboz99 May 15. 4 Replies

Hey all,I seem to have been dealt a rather poor hand of cards.  I've got narcolepsy, with cataplexy and sleep paralysis, but I'm also struggling with hemipeligic migraines.More general things I deal with are some rather bad allergies (dust, mold,…Continue

Tags: general, multiple conditions, coping, migraines

Recurring Nightmares

Started by copingwithnarcolepsy in General. Last reply by Scott Orn May 9. 5 Replies

I had a dream the other night that I haven't had since I was in my 30's, but the nightmare plagued me throughout my teenage years and 20's. I am standing at the bus stop waiting to come home from high school. There is a little dog running around in…Continue

Tags: recurring, nightmares

Latest Activity

Scott Orn left a comment for Jensacutie
"Great name Jensacutie! This is a wonderful place, welcome!"
15 hours ago
Jensacutie is now a member of Living With Narcolepsy - Online Support Group
15 hours ago

Moderator
Ben Munoz posted a discussion

What do you like to do to occupy your time with?

For those of you who aren't able to work any more. What do you like to do to fill your time? If you…See More
Monday
Britt_Nike23's discussion was featured

Dont want to work out because im tired all the time!!!!!!!!!!!! :(

I am in high school and im a great basketball player, i played my first 2 years and was in great…See More
Thursday
Scott Orn liked Britt_Nike23's discussion Dont want to work out because im tired all the time!!!!!!!!!!!! :(
Thursday

Moderator
Ben Munoz posted a page
May 16
Britt_Nike23 joined Jackie's group
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Narcolepsy Treatments and Reactions

How do you treat your condition? What is the most effective treatment available? Come and discuss…See More
May 15
Britt_Nike23 posted a discussion

Dont want to work out because im tired all the time!!!!!!!!!!!! :(

I am in high school and im a great basketball player, i played my first 2 years and was in great…See More
May 15

Top Content 

1 Recurring Nightmares

Recurring Nightmares

Posted by copingwithnarcolepsy on April 26, 2013

2 About to start Nuvigil...

About to start Nuvigil...

Posted by laurenrocco on April 1, 2013

3 My problem with narcolepsy

My problem with narcolepsy

Added by alla87 on April 28, 2013

4 Fear

Fear

Added by nomnomnom on April 14, 2013

5 Knowledge Seeking

Knowledge Seeking

Posted by Kraig on March 15, 2013

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    Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.

     

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    Blog Posts

    Good News

    Posted by copingwithnarcolepsy on May 3, 2013 at 5:36am 1 Comment

    I went before the SSDI judge yesterday and, with my attorney's help, I have been approved for benefits effective the 1st day I was absent from work! I have worried myself to death over this day for over 1 year and a half. The best part about the…

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    Ebaying the narcolepsy - lets raise a little awareness

    Posted by Crazy Narcolepsy on May 1, 2013 at 3:55am 1 Comment

    Just a bit of fun to raise a little awareness. Feel free to share via Facebook, Twitter (#narcolepsy) etc if you like it. Link …

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    I Have Decided

    Posted by copingwithnarcolepsy on April 30, 2013 at 7:57am 0 Comments

    My SSDI appeals hearing is this Thursday. I have decided that I have no control over the outcome and I offer the decision up to God. I know that I have a tendency to become depressed over situations like my brother's untimely death, worrying over…

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    My problem with narcolepsy

    Posted by alla87 on April 28, 2013 at 5:25pm 6 Comments

     

    I was diagnosed with narcolepsy…

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