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If your family has been affected by Narcolepsy, consider Living With Narcolepsy your second home.

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Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Ben's Friends Now a Non-Profit 501(c)(3) Organization

This enables all donations to be tax deductible (starting with any made from July 2013), makes us eligible for corporate donations and matching gifts, and gives us access to grants and foundations (dramatically widening our donor pool), and provides benefits reserved for nonprofits (such as Google Ads credits).
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Thank you, Members and Moderators, for hanging in there with us and never wavering as we went through this difficult process. Now the real work can begin!
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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.

Forum

Focusing vs Time

Started by Memedawn in General. Last reply by Memedawn Apr 10. 10 Replies

I don't know if it is just me, but I have huge issues with staying focused.  It's not that I can't focus at times, but I feel that my mind gets muggy and over crowded at times.  Well a lot.  Especially when I have a lot piled on me.  Maybe it's…Continue

Tags: sleepiness, with, time, racing, focusing

Have you heard of the National Vaccine Injury Compensation Program?

Started by dancermom in General. Last reply by dancermom Mar 28. 2 Replies

For those of you with vaccine-induced narcolepsy, there is a US program for compensation from vaccine injuries:http://www.hrsa.gov/vaccinecompensation/index.htmland there are many…Continue

Blood Test for Narcolepsy?

Started by Armando Abrero in General. Last reply by copingwithnarcolepsy Mar 28. 1 Reply

A recent Stanford study paves the way to a diagnostic blood test leading to early detection of narcolepsy and finding a cure.Follow this link for the full article.…Continue

Good Doctor. Afford meds?

Started by Susan in General. Last reply by dancermom Mar 23. 1 Reply

Hello all,I have a young man that is going to come and live with me. He is single and has no family. He is alone. My son has worked with him and knows him well. SayS he is brilliant and is IT HEALTHCARE. HE LOST JOB,LOST INSURANCE,CAN NOT AFFORD…Continue

Tags: meds, afford, evaluation, none, Healthcare

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sleepy K9 commented on sleepy K9's status
"so this is not where I want to be. I fought so hard to hold us together, but it didn't matter,…"
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sleepy K9 posted a status
"well.... she left me. the stress of my illness and the postpartum depression did us in. so now I have 2 baby mama's."
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sleepy K9 is now friends with copingwithnarcolepsy and Memedawn
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Donna T liked Gretchen's blog post Accepting Changes and Moving On...
Tuesday
Donna T commented on Gretchen's blog post Accepting Changes and Moving On...
"I feel exactly the same as you do. I also am going through the grieving process! While I am…"
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dancermom liked BigSteel's photo
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Shea and Jackie are now friends
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Top Content 

1 Bell's Palsy and Narcolepsy? Just wondering!

Bell's Palsy and Narcolepsy? Just wondering!

Added by copingwithnarcolepsy on March 29, 2014

2 Does it ever get better?

Does it ever get better?

Added by Donna T on April 10, 2014

3 Cataplexy Fallout

Cataplexy Fallout

Added by copingwithnarcolepsy on March 26, 2014

4 Focusing vs Time

Focusing vs Time

Posted by Memedawn on March 28, 2014

5 Newly Diagnosed with Narcolepsy

Newly Diagnosed with Narcolepsy

Added by Gretchen on March 11, 2014

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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Blog Posts

Does it ever get better?

Posted by Donna T on April 10, 2014 at 5:03am 5 Comments

Hi guys!



I was only diagnosed in January and at first I thought brilliant I am not crazy or losingmy mind like everyone was telling me I was. I was delighted to have a name that linked all of the crazy things that had been happening to me… Continue

Bell's Palsy and Narcolepsy? Just wondering!

Posted by copingwithnarcolepsy on March 29, 2014 at 7:30am 9 Comments

When I was 24 a very strange thing happened to me. I woke up one morning and my entire left side of my face was paralyzed. I immediately called my mother (who could have been a practicing doctor with all the medical knowledge she possessed)…

Continue

March 2014 Community Newsletter

Posted by Ben Munoz on March 27, 2014 at 11:22am 0 Comments

Dear Living With Narcolepsy Family and Friends,

March 2014 is an exciting month for Ben’s Friends, as everything seems to fall into place! But before we share the good news, we invite you to participate in a brief survey on the…

Continue

Cataplexy Fallout

Posted by copingwithnarcolepsy on March 26, 2014 at 6:07am 4 Comments

Yesterday, I woke up later than my usual time and experienced one of the worst cataplexy attacks  I have ever had. I was dreaming and couldn't wake up (sleep paralysis) and when I finally did shake myself out of the paralysis, I tried to get up…

Continue

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