Welcome! You are not alone.

If your family has been affected by Narcolepsy, consider Living With Narcolepsy your second home.


1. Become a Member 
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.


Birthdays Today

Need a Doctor or Specialist?

Need a Second Opinion?


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

Community Moderators

" To Know the Joy of Giving"


  • Add Videos
  • View All

Gift Store

ClinicalTrials.gov Studies

Loading… Loading feed


BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.



What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.


How long

Started by Shan in General. Last reply by shadow1 3 hours ago. 4 Replies

How do most people feel, how long they have been dealing with narcolepsy, cataplexy. Is it when they get a diagnosis or before a diagnosis?


Started by Nel in General. Last reply by shadow1 3 hours ago. 1 Reply

I read this on the sleep foundation website: "Counseling is very important for people with narcolepsy. The particular symptoms of this disorder are not widely understood by the general public and this may cause patients to feel uncomfortable,…Continue

Telemedicine Patient Education

Started by Ben Munoz in General 22 hours ago. 0 Replies

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the word about some research she is conducting.  The survey is about Telemedicine Sessions for Patient Education.   If you are interested the link is here …Continue

What is the silliest thing you have ever been asked or told about narcolepsy?

Started by dancermom in General. Last reply by Tired yesterday. 8 Replies

We all know there is a lot of misinformation out there about narcolepsy. And, we know that people who don't have narcolepsy may be full of opinions about your condition and things you should or shouldn't do. What is the silliest thing anyone has…Continue

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

shadow1 replied to Shan's discussion How long
"Cataplexy showed up around 15. Autonomic Behavior showed up in elementary school 2 types.…"
3 hours ago
shadow1 replied to Nel's discussion Counseling
"Counseling here is a pain. They seam to have problems understand sleep disorders. Sons taken an…"
3 hours ago

Nel left a comment for Mia
"Hello Mia and welcome to the group. I am so sorry you are in this situation. Has your blood…"
4 hours ago

dancermom left a comment for Mia
"Welcome, Mia, to this supportive community. Feel free to open a discussion to introduce yourself or…"
4 hours ago
Mia is now a member of Living With Narcolepsy - Online Support Group
4 hours ago

Nel replied to Shan's discussion How long
"I could have written that myself Carol even though my condition is different to all of…"
6 hours ago
Scott Orn left a comment for Lovestonap
"Giant welcome Lovestonap! I love naps too! One tip, if you have specific questions it's best…"
12 hours ago

Ben Munoz posted a discussion

Telemedicine Patient Education

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the…See More
22 hours ago

Top Content 


  • Add Photos
  • View All

Help Us Help Others

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Bens Friends

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Join Ben's Friends

To Support LivingWithNarcolepsy.org, Click an Ad. Or Two.

Blog Posts

Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 9:15am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…


My name is James and I'm a Narcoleptic

Posted by James Cheech on August 18, 2014 at 11:00am 11 Comments

I was diagnosed with Narcolepsy shortly after my first son was born in 2008. Before I was diagnosed I struggled for years with sleep paralysis,cataplexy and the constant daytime sleepiness. I could barely function in school I was always falling…


Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:36am 0 Comments

Just the Stats:



Welcome New Members and Greetings from Ben's Friends!


"You're a firework," as the song goes. We…

June 2014 Community Newsletter

Posted by Ben Munoz on June 29, 2014 at 11:24pm 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…


© 2014   Created by Bensfriends.org

Badges  |  Report an Issue  |  Terms of Service