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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.


problems with memory and focus

Started by TiredinGA in General. Last reply by TiredinGA 12 hours ago. 3 Replies

I have narcolepsy and sleep apnea requiring cpap at night. I currently take Provigil 200mg twice a day.Recently I have started having problems focusing and retaining information. I've been on same job for 15 years and done ok but now learn something…Continue

Narcolepsy Alert Dogs. Rare a few years ago but quite often reported now. Could such a dog help you?

Started by Nel in General. Last reply by Nel 16 hours ago. 2 Replies

Dogs with Odd JobsService Dogs and Teams Going Beyond Traditional Roles…Continue

Many Forms of Work

Started by Carol in General. Last reply by Nel 19 hours ago. 2 Replies

I worked part time for many years and now I can't. My brain is in the habit of not identifying the things I can do (some exercise, laundry, some working around the house) as work, even if I volunteer. It's a very rigid mindset and a hard habit to…Continue

So many questions...so many dead ends

Started by DarkFaerie in General. Last reply by Carol on Friday. 5 Replies

I have been dealing with what I always thought was insomnia since 1997. After numerous dead ends to my sleepless nights, and constant tiredness my doctors decided I needed to have an MSLT done. I had it done on March 2 of this year and my results…Continue

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Latest Activity

Ranger posted a blog post

A way to start to explain Narcolepsy to people...

Dear All,  Recently was thinking of an easy simple way for people to understand Narcolepsy.  This…See More
12 hours ago
TiredinGA replied to TiredinGA's discussion problems with memory and focus
"I've been on Provigil for  8 years. started off with 200mg once a day now 400mg twice a…"
12 hours ago
Tacp Girlfriend commented on SleepyGrunt's photo


"Gorgeous Puppies."
15 hours ago
Tacp Girlfriend liked SleepyGrunt's photo
15 hours ago
Tacp Girlfriend liked Narcobern's photo
15 hours ago

Nel replied to Nel's discussion Narcolepsy Alert Dogs. Rare a few years ago but quite often reported now. Could such a dog help you?
"Please do Tacp Girlfriend. Lovely to hear from you too. Good luck with the research and take care…"
16 hours ago
Tacp Girlfriend liked sarahquinn2275's discussion Shedding Some Light on the Invisible Disease... mega rant.
16 hours ago
Tacp Girlfriend replied to Nel's discussion Narcolepsy Alert Dogs. Rare a few years ago but quite often reported now. Could such a dog help you?
"Hello Nl! Always happy to hear from you. YAY! I have seriously been considering this option. A…"
16 hours ago

Top Content 

1 Does anyone else have recurrent hypersomnia - sleeping 18-20 hours a day?

Does anyone else have recurrent hypersomnia - sleeping 18-20 hours a day?

Posted by Virginia on March 25, 2015

2 A Real Eye-opener:  Narcolepsy bears classic autoimmune hallmarks

A Real Eye-opener: Narcolepsy bears classic autoimmune hallmarks

Posted by Nel on March 10, 2015

3 So many questions...so many dead ends

So many questions...so many dead ends

Posted by DarkFaerie on March 24, 2015

4 Many Forms of Work

Many Forms of Work

Posted by Carol on March 26, 2015

5 Happy Valentines Day!

Happy Valentines Day!

Posted by Nel on February 14, 2015



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Blog Posts

A way to start to explain Narcolepsy to people...

Posted by Ranger on March 31, 2015 at 8:44pm 0 Comments

Dear All,

  Recently was thinking of an easy simple way for people to understand Narcolepsy.

  This is what I came up with:

  Narcolepsy "is like when a person with type 1 Diabetes needs insulin".  When we need to sleep it's…


WANTED: Career in testing lazy-boy lounge and mattresses

Posted by sleepynearseattle on March 31, 2015 at 9:47am 0 Comments

VW Beetle car seat would fail the sleep test. Mine has to be dialed down. I love a bench in a truck on a long ferry ride. It seems I've always looked for a place to nap. At 15 I was a personal care attendant/homemaker. I would do my homework on…


Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 10:29am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…


What Narcolepsy CAN'T take away from me...

Posted by Princess Notso Bright on February 20, 2015 at 3:53pm 1 Comment

Hello my fellow PWN's, my name is Jessica and I have Narcolepsy and Cataplexy. I have suffered with symptoms since I was about 8 or 9 years old but was diagnosed at age 29 in 2014. I decided to become proactive in my search for answers and I started… Continue


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