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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.


STOP PRESS. TO UK MEMBERS. Watch 'This Morning' TODAY, Monday 2nd March

Started by Nel in General yesterday. 0 Replies

2 Mar 2015 — ITV "This Morning", Monday 2 March will feature a very courageous woman, Jacky Lloyd, who will be speaking about her struggle to access medication to combat her narcolepsy.…Continue

Tell me 5 things about you that aren't Narcolepsy-Related

Started by dancermom in General. Last reply by Nel Feb 23. 21 Replies

I am sure there is much more to all of you than your condition. Tell me 5 funny, surprising, interesting, or unexpected things about you. I'll start:1. I'm left handed.2. I am one of six children.3. I have lived in California, Iowa, New Jersey,…Continue

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Latest Activity

Nel liked Nel's discussion STOP PRESS. TO UK MEMBERS. Watch 'This Morning' TODAY, Monday 2nd March

Nel posted discussions

Nel left a comment for Leah
"Hello Leah. Welcome to the group. I almost cheered when you said that you have a terrific doctor.…"
Leah is now a member of Living With Narcolepsy - Online Support Group

Nel posted a discussion
elaine armstrong posted photos
Feb 23
elaine armstrong liked sarahquinn2275's photo
Feb 23

Nel replied to dancermom's discussion Tell me 5 things about you that aren't Narcolepsy-Related
"Ha ha Christina, you wouldn't like my garden. I have no pond but loads of frogs and even a…"
Feb 23



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Blog Posts

What Narcolepsy CAN'T take away from me...

Posted by Princess Notso Bright on February 20, 2015 at 3:53pm 0 Comments

Hello my fellow PWN's, my name is Jessica and I have Narcolepsy and Cataplexy. I have suffered with symptoms since I was about 8 or 9 years old but was diagnosed at age 29 in 2014. I decided to become proactive in my search for answers and I started… Continue

severe cataplexy

Posted by Lt Frost on December 30, 2014 at 4:34am 7 Comments


I just found this site a few weeks ago and think it is great.  My cataplexy is not triggered.  I am taking effexor and experience attacks even when I am at home by myself  These episodes lasts a good 20 minutes and always include…


A bit lost and not knowing how to feel nor what to do next..

Posted by Sophia on December 1, 2014 at 10:15pm 12 Comments

Been to the doctor and my diagnoses has been updated to narcolepsy w/cataplexy. My family can't accept it, it made my boyfriend have like a mini break down and is not allowed in the house. My kids have seen me have attacks and I don't know how to… Continue

Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 26, 2014 at 10:14am 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+



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