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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.


Really riled on your behalf.

Started by Nel in General. Last reply by Nel 18 hours ago. 15 Replies

I have google alert for Narcolepsy as well as other conditions and I get maybe a dozen a day of which maybe one in one hundred is really about Narcolepsy. I can't think of the name of any other disease which is misused like this, as if it was a…Continue

For our members in Australia: Julie Flygare flies the Narcolepsy flag on Australian TV

Started by Nel in General. Last reply by Ranger yesterday. 3 Replies

Live TV Narcolepsy Interview on The Daily Edition in Australiaby JULIE on NOVEMBER 24, 2014Tomorrow, I will be interviewed on live TV in Australia, sharing my story of narcolepsy on The Daily Edition. Aussie friends, be sure to tune in – it airs on…Continue

Driving with a diagnosis of narcolepsy

Started by shrinkmom in General. Last reply by Smiley yesterday. 6 Replies

I am interested in hearing from people who are still able to drive what their experiences have been. Until two weeks ago I was happy to say that my driving was fine. However, two weeks ago I had an accident in which I hit parked cars after a very…Continue

Who has migraines?

Started by Nel in General yesterday. 0 Replies

In the discussion about modafinil Sleeping Granny said her migraines returned when she took it and asks whether any if you have suffered as she has with migraines since your teens or whenever you developed narcolepsy?

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Latest Activity

Nel left a comment for Corinna
"Hi Corinna and welcome to the group It's midnight here in the UK so I will just say feel free…"
6 hours ago
Corinna is now a member of Living With Narcolepsy - Online Support Group
6 hours ago
Punkin liked Nel's discussion For our members in Australia: Julie Flygare flies the Narcolepsy flag on Australian TV
15 hours ago

Nel replied to Nel's discussion Really riled on your behalf.
"Favourite quote: "I try to take one day at a time, but sometimes several days attack me at…"
18 hours ago
DesnRen commented on DesnRen's blog post xyrem review
"@Zippy, you take Ritalin, nuvigil, and adderral through the day?"
Mia commented on DesnRen's blog post xyrem review
"@ Tacp Girlfriend.....are you on Adderal XR? I used to be on that type myself and it didn't…"
Ranger replied to Nel's discussion Really riled on your behalf.
"And "stressful situations" affect me negitivetly.... Ranger"
Ranger replied to Nel's discussion Really riled on your behalf.
"Just one other thing not many understand is the cognitive decline that affects me. At times I…"

Top Content 

1 Really riled on your behalf.

Really riled on your behalf.

Posted by Nel on November 21, 2014

2 Disturbing article: Are Modafinil's brain boosting benefits hype or science?

Disturbing article: Are Modafinil's brain boosting benefits hype or science?

Posted by Nel on November 17, 2014

3 Driving with a diagnosis of narcolepsy

Driving with a diagnosis of narcolepsy

Posted by shrinkmom on November 17, 2014

4 xyrem review

xyrem review

Added by DesnRen on October 16, 2014

5 Health professionals who have narcolepsy

Health professionals who have narcolepsy

Posted by shrinkmom on November 8, 2014



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Blog Posts

Narcolepsy and driving

Posted by Ranger2 on November 19, 2014 at 4:31pm 0 Comments

Driving with narcolepsy has not been a problem for me once I started taking medication for the condition.  However narcolepsy was the main culprit in my, earlier than planned, retirement due to one incident when I backed my county truck…


Health question re Freezing/"Riggors"

Posted by Ranger on November 5, 2014 at 12:38am 3 Comments

Hello All,


 Quick health question:


   Health: I woke up this morning so cold and shaking it was almost like I was having "seizures" shaking so badly, it was 66 degrees in the house, I had a sweat shirt…


Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:41am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…


xyrem review

Posted by DesnRen on October 16, 2014 at 5:56pm 11 Comments

Hi everybody!!!

I need some input on treating my narcolepsy. Provigik doesn't seem to help, adderral makes me mean and chives me nightmares and Ritalin helps a little but gives me bad jitters. I'm looking at taking Xyrem but would like… Continue


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