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If your family has been affected by Narcolepsy, consider Living With Narcolepsy your second home.


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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.


Calling new members

Started by Nel in General. Last reply by kris666 1 hour ago. 2 Replies

If you are a new member, please sign in and say, "Hi," introduce yourself, and share your story. We are a group of fellow narcolepsy sufferers, who are all in pursuit of improving our lives and better controlling our disease.Start your forum…Continue


Started by Lora in General 4 hours ago. 0 Replies

I have been prescribed a short term course of prednisone for a hip injury. Every time I take the prednisone I quickly become so sleepy that I am forced to nap, despite also being on my regular narcolepsy med that is extremely successful in keeping…Continue

A new article from the Sleep Review Mag: "Brain Fog" May Be Debilitating Symptom

Started by Nel in General. Last reply by C yesterday. 2 Replies

Brain Fog” May Be Debilitating Symptom -Published yesterday.Excessive daytime sleepiness (EDS) is a well-known symptom of narcolepsy, but EDS isn’t accurately described only as feeling tired during the day, people with narcolepsy say. It also…Continue

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Latest Activity

Scott Orn left a comment for kris666
"hi Kris! big welcome! One tip, if you have specific questions it's best to start a New…"
1 hour ago
kris666 replied to Nel's discussion Calling new members
"Hi. I'm Kris, I'm 25, and this is my first time ever writing in a forum. I was hesitant…"
1 hour ago
Lora's discussion was featured


I have been prescribed a short term course of prednisone for a hip injury. Every time I take the…See More
1 hour ago

Nel left a comment for kris666
"Hi kris. Welcome to the group. It must be difficult to have to shelve the search for a diagnosis…"
1 hour ago

dancermom left a comment for kris666
"Welcome, kris, to this supportive community. Feel free to open a discussion to introduce yourself…"
1 hour ago
kris666 is now a member of Living With Narcolepsy - Online Support Group
1 hour ago
Lora posted a discussion


I have been prescribed a short term course of prednisone for a hip injury. Every time I take the…See More
4 hours ago
elaine armstrong liked Nel's discussion A new article from the Sleep Review Mag: "Brain Fog" May Be Debilitating Symptom



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Blog Posts

A bit lost and not knowing how to feel nor what to do next..

Posted by Sophia on December 1, 2014 at 10:15pm 10 Comments

Been to the doctor and my diagnoses has been updated to narcolepsy w/cataplexy. My family can't accept it, it made my boyfriend have like a mini break down and is not allowed in the house. My kids have seen me have attacks and I don't know how to… Continue

Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 26, 2014 at 10:14am 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+


Narcolepsy and driving

Posted by Ranger2 on November 19, 2014 at 4:31pm 0 Comments

Driving with narcolepsy has not been a problem for me once I started taking medication for the condition.  However narcolepsy was the main culprit in my, earlier than planned, retirement due to one incident when I backed my county truck…


Health question re Freezing/"Riggors"

Posted by Ranger on November 5, 2014 at 12:38am 3 Comments

Hello All,


 Quick health question:


   Health: I woke up this morning so cold and shaking it was almost like I was having "seizures" shaking so badly, it was 66 degrees in the house, I had a sweat shirt…



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