Welcome! You are not alone.

Getting Started:

1. Become a Member 
2. Make Friends
3. Post to a Forum
4. Join or Create a Group

Check the Help tab above.


To maintain your privacy in a google-y universe, please do not use your real-life name.
Because we are a peer-to-peer support network, we ask that members not include honorifics, degrees or professional designations such as RN, Imam, PhD, Adv, MSW, Sr, Dr, Sgt, Dame, Rev, DO or similar in their screen name. We will not approve these after Sept 2015.

To change your screen name, click here


All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services for sale. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Religious content must be restricted to the Prayer Group.
  10. No politics, please.

Thanks for your cooperation.

Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.


What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is neurological and not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.

Many celebrities with Narcolepsy deal with the daily challenges of the disease as well.


Why do people act weird when you tell them about narcolepsy

Started by Jeanetta in General. Last reply by Carol Apr 25. 13 Replies

So newly diagnosed mother, active, pretty easy to talk to but when I post Anything about narcolepsy it's really quiet in FB Land. Why is that? Why the stigma? I even posted some video pretty good one one of Dr. Raj he was so excellent at explaining…Continue

Narcolepsy Newbie

Started by Bethany in General. Last reply by Carol Apr 25. 2 Replies

Hello all!  I am very new to all of this, as I just got diagnosed yesterday (although my doc was pretty sure that the sleep lab results would confirm that I had narcolepsy, due to my symptoms and the fact that I have mild symptoms of cataplexy). …Continue

New to all this, in need of some advice

Started by Beth in General. Last reply by Shawn Ingram Apr 21. 6 Replies

I am new to narcolepsy. I am currently on nuvigil but it only helps a lil what can my neurologist add to this? I'm very frustrated. Thank you in advance.

Treatment/Questions to ask doctor

Started by Jeanetta in General. Last reply by Jeanetta Apr 4. 2 Replies

Happy Easter!!!!I was just diagnosed with Narcolepsy, not a big shocker as I knew something was not right. I was a stay at home mom for 6 years I just went back to work almost a year ago. I love my job and am now in school to become a Montessori…Continue

Mobile App

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.

Latest Activity

Elodie left a comment for Lisa
"Welcome Lisa! Please feel free to share your experience by participating in discussions or by…"
Lisa is now a member of Living With Narcolepsy - Online Support Group
ModSupport liked Jeanetta's discussion Why do people act weird when you tell them about narcolepsy
Apr 26
Profile IconBethany , chybaskids, Jeanetta and 4 more were featured
Apr 25

Top Content 

1 Why do people act weird when you tell them about narcolepsy

Why do people act weird when you tell them about narcolepsy

Posted by Jeanetta on April 4, 2016

2 Narcolepsy Newbie

Narcolepsy Newbie

Posted by Bethany on April 14, 2016

3 New to all this,  in need of some advice

New to all this, in need of some advice

Posted by Beth on March 24, 2016


© 2016   Created by Bensfriends.org   Powered by

Badges  |  Report an Issue  |  Terms of Service