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About

 

What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.

Forum

Can you help our newer members?

Started by Nel in General. Last reply by Nel 20 hours ago. 4 Replies

Can you briefly outline your narclepsy story for our newer members, many of them newly diagnosed, who are looking for support and information. You must remember when you were given your diagnosis how you wondered what lay ahead. How do you manage…Continue

Nutrition, diet, life style related to health

Started by Ranger in General. Last reply by Nel yesterday. 3 Replies

Hello All,  Most of you know already I prefer more natural approaches to health. Relentlessly looking for non "drug" answers.I was diagnosed with:Celiac/"Gluten entropy" disease and many of these "associated conditions" listed here.…Continue

Huffington Post Headline: This Woman's Powerful Video Shows Just How Terrifying Life With Narcolepsy Can Be

Started by Nel in General yesterday. 0 Replies

Sarah Elizabeth's video has been reposted over and over again since she spoke up against videos poking fun at Narcolepsy, raising the profile of Narcolepsy probably far beyond her expectations.…Continue

Finding the silver lining...

Started by Princess Notso Bright in General. Last reply by Nel on Sunday. 18 Replies

This is my post I put on the Narcolepsy Network FB page I posted just a moment ago... I dont know what the outcome will be come tomorrow as far as the comments go, but I was hoping for a few good stories and was wondering if anyone on here could…Continue

Tags: success, positive

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Latest Activity

Scott Orn and dancermom are now friends
2 hours ago

Moderator
Nel replied to Nel's discussion Can you help our newer members?
"Thank you Kristen. I am really touched. I knew of narcolepsy before I joined the group, but all I…"
20 hours ago

Moderator
KristinTMAAF replied to Nel's discussion Can you help our newer members?
"Nel, I think you could find great help even in a Narcolepsy group.  I know it is not the same…"
yesterday
Ranger liked Ranger's discussion Nutrition, diet, life style related to health
yesterday

Moderator
Nel replied to Ranger's discussion Nutrition, diet, life style related to health
"I think I have less willpower with age. When I was in my 50s and very troubled by severe…"
yesterday
Ranger replied to Ranger's discussion Nutrition, diet, life style related to health
"Hello Nel,   I agree, diet changes are very difficult and best done slowly.  It was one…"
yesterday

Moderator
Nel replied to Ranger's discussion Nutrition, diet, life style related to health
"Thanks Ranger for that very interesting link.   i feel sure that Chris Kresser is right but…"
yesterday

Moderator
Nel posted a discussion

Huffington Post Headline: This Woman's Powerful Video Shows Just How Terrifying Life With Narcolepsy Can Be

Sarah Elizabeth's video has been reposted over and over again since she spoke up against videos…See More
yesterday

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Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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Blog Posts

xyrem review

Posted by DesnRen on October 16, 2014 at 5:56pm 3 Comments

Hi everybody!!!



I need some input on treating my narcolepsy. Provigik doesn't seem to help, adderral makes me mean and chives me nightmares and Ritalin helps a little but gives me bad jitters. I'm looking at taking Xyrem but would like… Continue

Do I actually believe this???

Posted by tessa1946 on October 4, 2014 at 8:35am 1 Comment

After learning I've had narcolepsy most of my life (I'm 68 years old - diagnosis 4 months ago), my inner chatter has been nearly silent since then. I'm shocked by this information that has required me to reevaluate the long list of misdiagnoses…

Continue

Ben's Friends Monthly Newsletter - September 2014 Issue

Posted by Ben Munoz on September 24, 2014 at 9:52am 0 Comments

Just the Stats:

Communities: 38

Friends: 42,500+




In this issue…

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Is it a mountain?

Posted by tessa1946 on September 9, 2014 at 10:21am 8 Comments

Up at 4:30 as usual, coffee ready, and assessing the steepness of the day's mountain to be climbed.  It won't be too taxing today since I have a appointment with the sleep doctor - maybe something for sleep - and my husband will drive. If the…

Continue

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