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About

 

What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.

Forum

MSLT results

Started by arowland in General. Last reply by Carol 1 hour ago. 1 Reply

Hi everyone, just wanted to thank you all for being so supportive! I apologize for the long post but here it goes....A couple of weeks ago during my MSLT 4 out of the 5 naps were interrupted by either testing of the fire alarms or construction work.…Continue

Do you have a supportive spouse or family members?

Started by Nel in General. Last reply by KristinTMAAF yesterday. 21 Replies

This thread pops up whatever we are talking about - support from our nearest and dearest. Some of us have it and some of us don't. How much does being without an understanding family, or any family at all, impact on having narcolepsy?

Can we discuss the financial impact of chronic illness?

Started by Nel in General. Last reply by Ranger on Monday. 16 Replies

Regardless of the disease, the country or the age, chronic illness is a catastrophic event for the individual and their family in all levels. Inability to work or to keep up with work, medical appointments, tests, special equipment and medications…Continue

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Latest Activity


Moderator
Nel commented on Nel's blog post From the writing of Monica Baldwin, 1893 - 1975
"It was 5th of March and the day after my daughter's due date! I slipped in the house and fell…"
1 hour ago
Carol replied to arowland's discussion MSLT results
"Arowland, I've been watching some videos on YouTube about narcolepsy, and I think one of them…"
1 hour ago
Carol commented on Nel's blog post From the writing of Monica Baldwin, 1893 - 1975
"Nel! When did you break your leg?"
2 hours ago

Moderator
Nel commented on Nel's blog post From the writing of Monica Baldwin, 1893 - 1975
"Thanks for asking Carol. I have Erythromelalgia topped off with a badly fractured leg. As the…"
2 hours ago
arowland posted a discussion

MSLT results

Hi everyone, just wanted to thank you all for being so supportive! I apologize for the long post…See More
8 hours ago
Carol commented on Nel's blog post From the writing of Monica Baldwin, 1893 - 1975
"Nel, do you get both fatigue and pain daily? That must be very hard. I really like the Monica…"
8 hours ago
Jensacutie commented on James Cheech's blog post My name is James and I'm a Narcoleptic
"Welcome James. I agree that Provigil sucks- it made me feel like a animated corpse. I was awake,…"
11 hours ago
SleepySleepyForever liked Nel's discussion You're so needy, by Wayne Connell.. I think this will resonate with many of us
13 hours ago

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Blog Posts

My name is James and I'm a Narcoleptic

Posted by James Cheech on August 18, 2014 at 11:00am 5 Comments

I was diagnosed with Narcolepsy shortly after my first son was born in 2008. Before I was diagnosed I struggled for years with sleep paralysis,cataplexy and the constant daytime sleepiness. I could barely function in school I was always falling…

Continue

Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:36am 0 Comments

Just the Stats:

Communities:36

Friends:41,000+



Welcome New Members and Greetings from Ben's Friends!

 

"You're a firework," as the song goes. We…
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June 2014 Community Newsletter

Posted by Ben Munoz on June 29, 2014 at 11:24pm 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…
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May 2014 Community Newsletter

Posted by Ben Munoz on May 30, 2014 at 4:30am 0 Comments

Rejoice and celebrate the season of Spring. Enjoy the colors and  the beauty of nature. Reach out to your friends and loved ones and share the warmth, the colors and happiness of Spring. Greetings from Ben’s Friends!

Welcome…

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