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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.


For those of you with kids with narcolepsy, at school or college

Started by Nel in General yesterday. 0 Replies

This is a very enlightened article from the Boston College Gavel. It could be worth while copying it and suggesting your child's school/college produce such a helpful explanation of Narcolepsy.…Continue

Let's help each other

Started by Nel in General. Last reply by Ranger on Tuesday. 1 Reply

(With thanks to S.K on the Living with Sjogrens site)Not only is it tough but often unrealistic to expect us to be overly optimistic; it can swing us too far into denial. It's not easy for those around us to understand our limitations, as we so…Continue

Huffington Post Headline: This Woman's Powerful Video Shows Just How Terrifying Life With Narcolepsy Can Be

Started by Nel in General. Last reply by dancermom on Monday. 1 Reply

Sarah Elizabeth's video has been reposted over and over again since she spoke up against videos poking fun at Narcolepsy, raising the profile of Narcolepsy probably far beyond her expectations.…Continue

This is a cheerful way to start the weekend.

Started by Nel in General. Last reply by dancermom on Monday. 1 Reply

Narcolepsy ambassador Julie Flygare on her experiences working with Honda (I think we have quite forgiven Honda now) to make a Narcolepsy Public Service Awareness film…Continue

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Latest Activity

Tacp Girlfriend commented on DesnRen's blog post xyrem review
"Hi Desnre, Boy, am I ever behind! I hope that you have already find your best treatment options,…"
26 minutes ago

Nel left a comment for waziam
"Happy Birthday Waziam. We haven't heard from you in a long time. How are you doing? I hope you…"
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"Huge welcome Sylvia! One tip, if you have specific questions it's best to start a New…"
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SleepyGrunt commented on SleepyGrunt's photo


"Thank you, and they definitely are. But I also get very depressed B/C I miss so much. "
21 hours ago

Nel posted a discussion

For those of you with kids with narcolepsy, at school or college

This is a very enlightened article from the Boston College Gavel. It could be worth while copying…See More

Nel left a comment for Sylvia
"Hello Sylvia and welcome to the group. We have a number of parents in the group with a teenage, or…"

dancermom left a comment for Sylvia
"Welcome, Sylvia, to this supportive community. Feel free to open a discussion to introduce yourself…"
Profile IconSylvia and Paul joined Living With Narcolepsy - Online Support Group

Top Content 

1 Are you alone in your family in having a rare disease?  If not, can you use your awareness to help them?

Are you alone in your family in having a rare disease? If not, can you use your awareness to help them?

Posted by Nel on October 8, 2014

2 Sleep Texting

Sleep Texting

Posted by Carol on October 3, 2014

3 Does Autoreactivity have a Role in Narcoleosy?

Does Autoreactivity have a Role in Narcoleosy?

Posted by Nel on October 13, 2014

4 xyrem review

xyrem review

Added by DesnRen on October 16, 2014

5 Let's help each other

Let's help each other

Posted by Nel on October 27, 2014



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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:41am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…


xyrem review

Posted by DesnRen on October 16, 2014 at 5:56pm 4 Comments

Hi everybody!!!

I need some input on treating my narcolepsy. Provigik doesn't seem to help, adderral makes me mean and chives me nightmares and Ritalin helps a little but gives me bad jitters. I'm looking at taking Xyrem but would like… Continue

Do I actually believe this???

Posted by tessa1946 on October 4, 2014 at 8:35am 1 Comment

After learning I've had narcolepsy most of my life (I'm 68 years old - diagnosis 4 months ago), my inner chatter has been nearly silent since then. I'm shocked by this information that has required me to reevaluate the long list of misdiagnoses…


Ben's Friends Monthly Newsletter - September 2014 Issue

Posted by Ben Munoz on September 24, 2014 at 9:52am 0 Comments

Just the Stats:

Communities: 38

Friends: 42,500+

In this issue…



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