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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.

Forum

How long

Started by Shan in General. Last reply by shadow1 3 hours ago. 4 Replies

How do most people feel, how long they have been dealing with narcolepsy, cataplexy. Is it when they get a diagnosis or before a diagnosis?

Counseling

Started by Nel in General. Last reply by shadow1 3 hours ago. 1 Reply

I read this on the sleep foundation website: "Counseling is very important for people with narcolepsy. The particular symptoms of this disorder are not widely understood by the general public and this may cause patients to feel uncomfortable,…Continue

Telemedicine Patient Education

Started by Ben Munoz in General 22 hours ago. 0 Replies

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the word about some research she is conducting.  The survey is about Telemedicine Sessions for Patient Education.   If you are interested the link is here …Continue

What is the silliest thing you have ever been asked or told about narcolepsy?

Started by dancermom in General. Last reply by Tired yesterday. 8 Replies

We all know there is a lot of misinformation out there about narcolepsy. And, we know that people who don't have narcolepsy may be full of opinions about your condition and things you should or shouldn't do. What is the silliest thing anyone has…Continue

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Latest Activity

shadow1 replied to Shan's discussion How long
"Cataplexy showed up around 15. Autonomic Behavior showed up in elementary school 2 types.…"
3 hours ago
shadow1 replied to Nel's discussion Counseling
"Counseling here is a pain. They seam to have problems understand sleep disorders. Sons taken an…"
3 hours ago

Moderator
Nel left a comment for Mia
"Hello Mia and welcome to the group. I am so sorry you are in this situation. Has your blood…"
4 hours ago

Moderator
dancermom left a comment for Mia
"Welcome, Mia, to this supportive community. Feel free to open a discussion to introduce yourself or…"
4 hours ago
Mia is now a member of Living With Narcolepsy - Online Support Group
4 hours ago

Moderator
Nel replied to Shan's discussion How long
"I could have written that myself Carol even though my condition is different to all of…"
6 hours ago
Scott Orn left a comment for Lovestonap
"Giant welcome Lovestonap! I love naps too! One tip, if you have specific questions it's best…"
12 hours ago

Moderator
Ben Munoz posted a discussion

Telemedicine Patient Education

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the…See More
22 hours ago

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Blog Posts

Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 9:15am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+




In this issue…

Continue

My name is James and I'm a Narcoleptic

Posted by James Cheech on August 18, 2014 at 11:00am 11 Comments

I was diagnosed with Narcolepsy shortly after my first son was born in 2008. Before I was diagnosed I struggled for years with sleep paralysis,cataplexy and the constant daytime sleepiness. I could barely function in school I was always falling…

Continue

Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:36am 0 Comments

Just the Stats:

Communities:36

Friends:41,000+



Welcome New Members and Greetings from Ben's Friends!

 

"You're a firework," as the song goes. We…
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June 2014 Community Newsletter

Posted by Ben Munoz on June 29, 2014 at 11:24pm 0 Comments

Summer - the time of the year where some of our wonderful and fun memories are made. As a quote goes, "Life without love is like a year without summer."  Spend some time with your loved ones, enjoy the sights and sounds of nature and feel the…
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