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Ben's Friends Fundraiser

Hi Past & Present Ben's Friends Supporters! 
We really need your help. Our annual Ben's Friends fundraiser is way below goal. So far we are at $14k with many generous donations. But at the very least we need to be at $25k, and ideally at $35k or above. 
We're probably the most efficient non profit in the world, helping 125,000 patients per month with a budget of $3k per month. But even we can't survive on $14k. 

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We really need your help! Please donate, even if it's $5, that will really help.

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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.

Forum

Very Happy Birthday Nell - Wishing you a wonderful year ahead!

Started by Smiley in General. Last reply by Nel 17 hours ago. 5 Replies

Nell - Happy Birthday and thank you for everything you do for the community and the help you've given me this year. You are trully appreciated, xxSmiley.Continue

Are there any youngsters interested in taking part in a Post-Graduate's research project?

Started by Nel in General yesterday. 0 Replies

Hi, my name is Rachel Taylor-Coyle and I’m currently doing a Post-Graduate Higher Diploma in psychology. As part of this Post-Graduate Higher Diploma I am undertaking a research project titled ‘narcolepsy and its association with negative mental…Continue

Shedding Some Light on the Invisible Disease... mega rant.

Started by sarahquinn2275 in General. Last reply by Carol on Wednesday. 3 Replies

Hello LWN-ers! I'm a relatively new member to this site, but I'm already completely blown away by the acceptance and support of this community...I started this discussion because 2 days ago, January 8th, was my 19th birthday... As one of the .05% of…Continue

NarcoSlayer's story

Started by Narcoslayer in General. Last reply by Ranger Jan 19. 9 Replies

I have tried every medication Narco combo package available... Currently on Xyrem,Ritalin and D-Amphetamine. Before I was diagnosed with Narco my family and friends use to call me " Supermom " Being in Law Enforcement I would work my regular shift…Continue

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Latest Activity


Moderator
Nel replied to Smiley's discussion Very Happy Birthday Nell - Wishing you a wonderful year ahead!
"Thank you Kristin.  I hope you are doing well - we should talk more often.  After a busy…"
17 hours ago

Moderator
KristinTMAAF replied to Smiley's discussion Very Happy Birthday Nell - Wishing you a wonderful year ahead!
"Happy Birthday to you love.  You are such a huge part of this community.  Without you, I…"
18 hours ago

Moderator
Nel replied to Smiley's discussion Very Happy Birthday Nell - Wishing you a wonderful year ahead!
"Thank you Carol:)"
yesterday
Carol replied to Smiley's discussion Very Happy Birthday Nell - Wishing you a wonderful year ahead!
":) Happy Birthday, Nel! Thank you for keeping us all connected!"
yesterday
Ranger liked Nel's discussion Are there any youngsters interested in taking part in a Post-Graduate's research project?
yesterday
SleepinBeauty liked Nel's discussion Are there any youngsters interested in taking part in a Post-Graduate's research project?
yesterday

Moderator
Nel posted a discussion

Are there any youngsters interested in taking part in a Post-Graduate's research project?

Hi, my name is Rachel Taylor-Coyle and I’m currently doing a Post-Graduate Higher Diploma in…See More
yesterday

Moderator
Nel joined Ben Munoz's group
Thumbnail

Natural Healing Group

This group is focused on ways to help your Narcolepsy naturally. Members may present different…See More
Saturday

Top Content 

1 Sleep "attacks"?

Sleep "attacks"?

Posted by pwntek on January 9, 2015

2 Emotional Support

Emotional Support

Posted by Nel on January 2, 2015

3 Shedding Some Light on the Invisible Disease... mega rant.

Shedding Some Light on the Invisible Disease... mega rant.

Posted by sarahquinn2275 on January 10, 2015

4 NarcoSlayer's story

NarcoSlayer's story

Posted by Narcoslayer on January 18, 2015

5 Very Happy Birthday Nell - Wishing you a wonderful year ahead!

Very Happy Birthday Nell - Wishing you a wonderful year ahead!

Posted by Smiley on January 23, 2015

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First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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Blog Posts

severe cataplexy

Posted by Lt Frost on December 30, 2014 at 4:34am 1 Comment

Hi,

I just found this site a few weeks ago and think it is great.  My cataplexy is not triggered.  I am taking effexor and experience attacks even when I am at home by myself  These episodes lasts a good 20 minutes and always include…

Continue

A bit lost and not knowing how to feel nor what to do next..

Posted by Sophia on December 1, 2014 at 10:15pm 12 Comments

Been to the doctor and my diagnoses has been updated to narcolepsy w/cataplexy. My family can't accept it, it made my boyfriend have like a mini break down and is not allowed in the house. My kids have seen me have attacks and I don't know how to… Continue

Ben's Friends Monthly Newsletter - November 2014 Issue

Posted by Ben Munoz on November 26, 2014 at 10:14am 0 Comments

Just the Stats:

Communities: 38

Friends: 44,000+

GratitudeThank…
Continue

Narcolepsy and driving

Posted by Ranger2 on November 19, 2014 at 4:31pm 0 Comments

Driving with narcolepsy has not been a problem for me once I started taking medication for the condition.  However narcolepsy was the main culprit in my, earlier than planned, retirement due to one incident when I backed my county truck…

Continue

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