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If your family has been affected by Narcolepsy, consider Living With Narcolepsy your second home.


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What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.


Do you occupy some of your waking hours with Arts and Crafts?

Started by Nel in General. Last reply by tessa1946 on Tuesday. 12 Replies

I noticed a large number of our members list Art or a Craft as something they are passionate about. I can't draw for toffee but love making things for the kids, decorating cakes etc. What is your artistic passion?

Medical ID Bracelets?

Started by MissWooten in General. Last reply by MissWooten on Tuesday. 19 Replies

Hello, I was recently diagnosed with Narcolepsy with Mild Cataplexy (like a few weeks ago recently). My mom, whom I am very close to, is encouraging me to wear a Medical ID bracelet because there are certain types of anesthesia I shouldn't be put…Continue

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Latest Activity

Scott Orn left a comment for Momoftwins
"Hi MomofTwins -  Huge welcome to the community! This is a great place! One tip, if you have…"
1 hour ago

Nel left a comment for Momoftwins
"Hello Momoftwins and welcome to the group. As dancermom said, when you are ready do ask any…"
12 hours ago

dancermom liked Nel's discussion New Narcolepsy Support Group in Central Virginia
13 hours ago

dancermom liked Nel's discussion A new group in San Antonio, meeting on Saturday, RSVPs tomorrow.
13 hours ago

dancermom left a comment for Momoftwins
"Welcome, Momoftwins, to this supportive community. (I'm a mom of twins, too.) Feel free to…"
13 hours ago
Momoftwins is now a member of Living With Narcolepsy - Online Support Group
13 hours ago

Nel posted discussions

Nel left a comment for Belboz99
"Hi Belboz99 Happy Birthday. I hope you have a lovely day. How are you doing? we would love an…"

Top Content 

1 Finding the silver lining...

Finding the silver lining...

Posted by Princess Notso Bright on September 6, 2014

2 Do you occupy some of your waking hours with Arts and Crafts?

Do you occupy some of your waking hours with Arts and Crafts?

Posted by Nel on September 16, 2014

3 Hi! I need some advice

Hi! I need some advice

Posted by Kelsey098 on September 17, 2014

4 New to this site

New to this site

Posted by Sophia on September 7, 2014

5 New Research:   UCLA researchers find clue to Narcolepsy's cause.

New Research: UCLA researchers find clue to Narcolepsy's cause.

Posted by Nel on September 24, 2014



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Blog Posts

Ben's Friends Monthly Newsletter - September 2014 Issue

Posted by Ben Munoz on September 24, 2014 at 9:52am 0 Comments

Just the Stats:

Communities: 38

Friends: 42,500+

In this issue…


Is it a mountain?

Posted by tessa1946 on September 9, 2014 at 10:21am 1 Comment

Up at 4:30 as usual, coffee ready, and assessing the steepness of the day's mountain to be climbed.  It won't be too taxing today since I have a appointment with the sleep doctor - maybe something for sleep - and my husband will drive. If the…


Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 9:15am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…


My name is James and I'm a Narcoleptic

Posted by James Cheech on August 18, 2014 at 11:00am 11 Comments

I was diagnosed with Narcolepsy shortly after my first son was born in 2008. Before I was diagnosed I struggled for years with sleep paralysis,cataplexy and the constant daytime sleepiness. I could barely function in school I was always falling…



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