Welcome! You are not alone.
If your family has been affected by Narcolepsy, consider Living With Narcolepsy your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
" To Know the Joy of Giving"
BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical.
Know more about our PARTNERS, visit this link.
Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.
Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.
Hi everyone, just wanted to thank you all for being so supportive! I apologize for the long post but here it goes....A couple of weeks ago during my MSLT 4 out of the 5 naps were interrupted by either testing of the fire alarms or construction work.…Continue
Read the whole of this athttp://invisibledisabilities.org/wp-content/uploads/2014/07/Youre-So-Needy.jpg“You could get better if you wanted to.” “You should…Continue
This thread pops up whatever we are talking about - support from our nearest and dearest. Some of us have it and some of us don't. How much does being without an understanding family, or any family at all, impact on having narcolepsy?
Regardless of the disease, the country or the age, chronic illness is a catastrophic event for the individual and their family in all levels. Inability to work or to keep up with work, medical appointments, tests, special equipment and medications…Continue
Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
Posted by Nel on August 14, 2014
Posted by arowland on July 29, 2014
So many questions..I'll start with these three. Is it normal to have difficulty reading, remembering words when speaking, and want only to eat carbs?
Posted by Tired on July 30, 2014
Posted by Nel on August 12, 2014
Posted by angie frazier on July 31, 2014