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If your family has been affected by Narcolepsy, consider Living With Narcolepsy your second home.

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About

 

What is Narcolepsy?

Narcolepsy is a chronic sleep disorder, or dyssomnia, characterized by excessive sleepiness and sleep attacks at inappropriate times, such as while at work. People with narcolepsy often experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which often is confused with insomnia. Narcoleptics, when falling asleep, generally experience the REM stage of sleep within 5 minutes; whereas most people do not experience REM sleep until an hour or so later.

Narcolepsy is a neurological sleep disorder. It is not caused by mental illness or psychological problems. It is most likely affected by a number of genetic mutations and abnormalities that affect specific biologic factors in the brain, combined with an environmental trigger during the brain's development, such as a virus.

Forum

Hi! I need some advice

Started by Kelsey098 in General. Last reply by Amie MacDonald 1 hour ago. 3 Replies

I was just recently diagnosed with Narcolepsy. I have never experience cataplexy or anything dramatic I just know I have excessive daytime sleepiness and sometimes at night I won't know if i'm dreaming or awake. I get up at 6am and I begin my day, I…Continue

Medical Marijuana for Narcolepsy/Narcolepsy with Cataplexy?

Started by Amie MacDonald in General 2 hours ago. 0 Replies

Does anyone have any experience with or have any information on the use of Medical Marijuana to treat the symptoms of Narcolepsy or Narcolepsy with Cataplexy?

Do you occupy some of your waking hours with Arts and Crafts?

Started by Nel in General. Last reply by Nel 14 hours ago. 8 Replies

I noticed a large number of our members list Art or a Craft as something they are passionate about. I can't draw for toffee but love making things for the kids, decorating cakes etc. What is your artistic passion?

New to this site

Started by Sophia in General. Last reply by Carol yesterday. 5 Replies

I am quite new here and looking for individuals I can connect with and build friendships and much more with. I'm still learning about narcolepsy I have been diagnosed since I was 18 and now I'm 24. I have two wonderful children a daughter that is 4…Continue

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Latest Activity

Amie MacDonald replied to Kelsey098's discussion Hi! I need some advice
"Hi Kellsey, I am so sorry that you are struggling right now. It has been my experience that getting…"
1 hour ago
Amie MacDonald posted a discussion

Medical Marijuana for Narcolepsy/Narcolepsy with Cataplexy?

Does anyone have any experience with or have any information on the use of Medical Marijuana to…See More
2 hours ago

Moderator
Nel left a comment for Amie MacDonald
"Hello Amie and welcome to the group. I see that while I was asleep here in the UK Scott welcomed…"
4 hours ago
Scott Orn left a comment for Amie MacDonald
"Hi Amie -  Huge welcome to the community! This is a great place! One tip, if you have specific…"
7 hours ago
Amie MacDonald is now a member of Living With Narcolepsy - Online Support Group
7 hours ago
Ranger replied to Kelsey098's discussion Hi! I need some advice
"Hi,  Welcome!  There are many bright sides but they will be hard to find.  Best…"
8 hours ago
DesnRen replied to Kelsey098's discussion Hi! I need some advice
"Kelsey I'm so glad you found this site early on in your diagnosis. My top advice is to share…"
13 hours ago

Moderator
Nel replied to Nel's discussion Do you occupy some of your waking hours with Arts and Crafts?
"That makes good sense. It's a dicey industry to be in- probably best kept as a hobby."
14 hours ago

Top Content 

1 Finding the silver lining...

Finding the silver lining...

Posted by Princess Notso Bright on September 6, 2014

2 What would be an ideal present for someone with Narcolepsy?

What would be an ideal present for someone with Narcolepsy?

Posted by Nel on August 21, 2014

3 Counseling

Counseling

Posted by Nel on August 31, 2014

4 New to this site

New to this site

Posted by Sophia on September 7, 2014

5 Do you occupy some of your waking hours with Arts and Crafts?

Do you occupy some of your waking hours with Arts and Crafts?

Posted by Nel on September 16, 2014

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For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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Blog Posts

Is it a mountain?

Posted by tessa1946 on September 9, 2014 at 10:21am 0 Comments

Up at 4:30 as usual, coffee ready, and assessing the steepness of the day's mountain to be climbed.  It won't be too taxing today since I have a appointment with the sleep doctor - maybe something for sleep - and my husband will drive. If the…

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Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 9:15am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+




In this issue…

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My name is James and I'm a Narcoleptic

Posted by James Cheech on August 18, 2014 at 11:00am 11 Comments

I was diagnosed with Narcolepsy shortly after my first son was born in 2008. Before I was diagnosed I struggled for years with sleep paralysis,cataplexy and the constant daytime sleepiness. I could barely function in school I was always falling…

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Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:36am 0 Comments

Just the Stats:

Communities:36

Friends:41,000+



Welcome New Members and Greetings from Ben's Friends!

 

"You're a firework," as the song goes. We…
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